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Board Member Volunteer

Huntington disease (HD) is a debilitating brain disorder that is fatal and incurable. About one in every 7,000 Canadians has HD and approximately one in every 5,500 is at-risk of developing the disease. Many more are touched by HD whether as a caregiver, a family member, or a friend. Huntington disease is often described as having the symptoms of Alzheimer’s, Parkinson’s and ALS – simultaneously. As the disease progresses, a person with Huntington’s becomes less able to manage movements, recall events, make decisions and control emotions. The disease leads to incapacitation and, eventually, death.

The Huntington Society of Canada (HSC) is a respected leader in the worldwide effort to find a meaningful treatment for Huntington disease. HSC is the only Canadian health charity dedicated to providing help and hope for families dealing with Huntington disease across Canada.

VISION, MISSION AND VALUES

Family is at the heart of our community. Our families and volunteers tell a powerful story of caring people who pull together to improve the quality of life for Canadians impacted by Huntington disease (HD).

HD is a fatal hereditary brain disorder with devastating effects on both the mind and body. It is like having the symptoms of Alzheimer’s, Parkinson’s and ALS all in one disease.

The good news is, with recent medical breakthroughs many researchers and scientists believe that once we are successful in stopping the progression of HD, we will also find the answers to many other neurological diseases. Your valued support will bring us one step closer to this goal.

VISION

A world free from Huntington disease.

MISSION

To improve the quality of life for those affected by Huntington disease.

We will address our mission through the oversight and facilitation of excellent support services, providing access to the best and most up-to-date educational resources, increasing national and global awareness, advocacy and investing in promising research.

VALUES

Compassion; Integrity; Accountability; Inclusiveness; Collaboration; Leadership; Empowerment.

Interested in getting involved?

HSC is now accepting applications to its Board of Directors from individuals with the following expertise:

• Advocacy
• Finance
• Investment
• Legal

Please apply with your CV and Letter of Interest outlining your skills and experience to us.

Thank you for your interest. Only qualified candidates selected for interviews will be contacted.