Volunteer Support Group Facilitator

Position: Volunteer Support Group Facilitator

Organization: Stevens-Johnson Syndrome (SJS) Canada

Location: Remote

Commitment: Flexible, approx. 3–5 hours per week

About SJS Canada

SJS Canada is dedicated to supporting individuals and families affected by Stevens-Johnson

Syndrome (SJS) and Toxic Epidermal Necrolysis (TEN). Our mission is to provide education,

advocacy, and emotional support to those impacted by these life-threatening conditions.

Role Overview

We are seeking a compassionate and reliable Volunteer Support Group Facilitator to lead our

monthly virtual support group. This group offers a safe and welcoming space where individuals

affected by SJS/TEN can share their experiences, seek guidance, and connect with others who

understand their journey.

Responsibilities

• Facilitate monthly virtual support group meetings in an inclusive, supportive, and

respectful manner.

• Encourage participation while ensuring a safe and confidential environment.

• Provide resources and information on coping strategies, medical updates, and emotional

well-being.

• Collaborate with the SJS Canada team to promote group meetings and maintain

engagement.

• Uphold confidentiality and foster a trusting space for open discussions.

• Refer participants to professional support services when necessary (e.g., medical or

mental health professionals).

Qualifications

• Personal experience with SJS/TEN (as a survivor, caregiver, or healthcare professional)

is strongly preferred.

• Experience in group facilitation, peer support, or counseling is an asset.

• Familiarity with supporting individuals coping with chronic illness.

• Strong communication and active listening skills with a compassionate approach.

• Ability to manage group dynamics and ensure a positive, inclusive environment.

• Comfortable using virtual meeting platforms (e.g., Zoom, Google Meet).

Benefits of Volunteering

• Make a meaningful impact in the SJS/TEN community.

• Gain valuable experience in facilitation, leadership, and support group coordination.

• Connect with others and build a strong, supportive network.

• Receive training and ongoing support from SJS Canada.

How to Apply

If you're interested in becoming a Volunteer Support Group Facilitator, please email

info@sjscanada.org with a brief introduction about yourself and why you’d like to volunteer.

Together, we can create a space for healing, hope, and connection.

SJS Canada – Supporting, Educating, and Advocating for Those Affected by SJS/TEN