National Coordinator, Marketing & Communications (Bilingual - French/English)

About Defeat Duchenne Canada:

Defeat Duchenne Canada is the country’s only national charity dedicated exclusively to ending Duchenne muscular dystrophy. Throughout our 30-year history, we have led the way in research funding, advocacy, education and family support.

Our organization, originally known as Jesse’s Journey, was founded in 1995 when John Davidson pushed his son Jesse across Ontario to raise awareness and funds for Duchenne research. Our organization since then has grown into Canada’s largest funder of Duchenne research. Beyond research, we continue to champion equitable access to care, accelerate scientific progress, and support families at every stage of their Duchenne journey.

About Duchenne muscular dystrophy:

Duchenne muscular dystrophy is the most common form of muscular dystrophy diagnosed in childhood, affecting approximately one in every 5,000 boys. In Canada, we estimate that roughly 1,000 individuals are living with Duchenne. It is a progressive, rare genetic disorder caused by the absence of dystrophin, a protein essential for muscle function and repair. While it primarily affects males at birth, Duchenne has a profound impact on families, communities and healthcare systems. The treatment landscape has expanded exponentially over the past decade, yet there remains an urgent need for both a cure and comprehensive, lifelong support. Access to equitable treatments in Canada continues to be a challenge, and coordinated adult care is limited for many in our communities.

Role Overview

The National Coordinator, Marketing & Communications, plays an important role in executing Defeat Duchenne Canada’s national marketing and communications activities, with a strong focus on bilingual content and engagement with Francophone communities. This role is ideal for a highly organized and process-driven individual, with a strong ability to manage workflows, prioritize tasks, and consistently deliver well-executed communications that are thoughtful and audience-aware.

Reporting to the National Director of Organizational Marketing & Communications, the Coordinator supports the planning, creation, translation, scheduling, and distribution of content across all digital channels in both French and English. The Coordinator will be responsible for helping ensure that families, supporters, and partners across Canada receive clear, timely communications that strengthen national engagement and trust.

This role contributes to strengthening national awareness, deepening community connections, and supporting fundraising, advocacy, research, and education initiatives through thoughtful, high-quality communications.

Key Responsibilities

1. Bilingual Content Creation & Publishing Across Channels

Supporting the National Director, Marketing & Communications, the Coordinator will be responsible for:

• Write, adapt, and translate content in both English and French for:
  • Social media posts
  • E-newsletters and email campaigns
  • Website updates and news posts
  • Event and campaign communications
  • Family-facing resources
• Ensure all content aligns with organizational brand, tone, and messaging guidelines
• Support execution of campaign calendars for fundraising, research, advocacy, education and support, and awareness
• Build and deploy newsletters and email campaigns using our Customer Relationship Management (CRM) software and email platforms
• Post and update content in WordPress, including basic layout, formatting, and image placement

2. French-Language Community Engagement & Partnerships

• Lead conversations in French with families, healthcare professionals, researchers, and community partners
• Build and maintain relationships with Québec-based and Francophone organizations, participate in French-language committees, meetings, and events, and identify opportunities for collaboration across the Francophone rare-disease and Duchenne communities
• Support authentic storytelling by ensuring Francophone individuals and families’ experiences and perspectives are represented across all communications

3. Collaboration & Workflow

• Work closely with National Directors, Marketing & Communications leadership to implement communications plans and priorities
• Collaborate with internal teams (Research, Advocacy, Education & Support, Philanthropy, Community Engagement) to support campaign, event, and program communications needs
• Coordinate timelines, tasks, and deliverables using project management tools (e.g., Trello)

Required Qualifications

• Fully bilingual in French and English (written and spoken)
• Strong writing and editing skills in both French and English
• 3+ years of experience (or equivalent) in marketing, communications, digital media, or a related field.
• Strong attention to detail, organization, and time management
• Ability to work collaboratively in a fast-paced environment with multiple priorities
• Strong communication skills, with empathy and cultural awareness

Technical Skills

• Google and Microsoft Workspace (Word/Docs, Excel/Sheets, Drive)
• Email marketing and CRM platforms (e.g., Mailchimp, Blackbaud/Raiser’s Edge or similar)
• Social media scheduling tools (e.g., Sprout or similar)
• WordPress or other content management systems
• Canva or similar design tools
• Experience with AI tools such as Claude and ChatGPT

Assets (Nice to Have)

• Experience in nonprofit, healthcare, or patient-focused communications
• Experience engaging Francophone communities, particularly in Québec
• Experience supporting fundraising or advocacy campaigns
• Experience in journalism, publishing, or editorial writing

Applications will be accepted until Friday, May 8, 2026 at 5:00 p.m. ET. Interested candidates are invited to submit a cover letter and résumé to careers@defeatduchenne.ca. Please note that French-language proficiency will be assessed as part of the selection process.