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Privacy Law and Governance in the Non-profit Sector (Part 1 of 2)

October 20, 2003
By Jeffrey H. McCully

The Personal Information Protection and Electronic Documents Act, S.C. 2000, c.5, and its impact on non-profit organizations and charities.

With so much written in the past couple of years and particularly in the past few months, about new and impending privacy legislation, I thought it important to clear up some misconceptions about the various laws and their applicability to the non-profit sector. Being a corporate lawyer, operating within the non-profit sector, I have recently received requests from other charitable and non-profit leaders as to how these laws will affect their organizations. I am not alone. The Office of the Privacy Commissioner, since January of 2001, has received well over 25,000 inquiries. Questions I have been asked include such ones as, "How should we prepare?" and "What will we have to do differently with donor lists?" and "Can our Central Office in one province, communicate private information with offices in different jurisdictions?" With this paper, I will endeavour to answer many of these questions and to give an overview of the increasingly important area.

The Federal Legislation

Since January 2001, the federal Personal Information Protection and Electronic Document Act (PIPEDA), Part 1, has been law and has been in effect for banks, the RCMP, CSIS, airlines and airports, railways, telecommunications industries, radio stations and other cross-border undertakings, and similar undertakings for which the federal government has constitutional legislative authority. Also included are certain Crown corporations operating in these areas, such as the CBC. Additionally, the legislation already applies to every non-federally regulated organization that does the following things: On January 1, 2004, the three-year phase-in of the PIPEDA will be complete and will apply the legislation to most organizations in Canada, including businesses and even non-businesses that are conducting a "commercial activity". Indeed, the law will impact on the way that certain organizations collect, use and disclose personal information about individuals in the course of daily commercial activities and even in larger one-time transactions such a business acquisition.

Understanding the applicability of the federal legislation is a matter of appreciating the federal-provincial division of powers. Some matters are reserved for the exclusive legislative domain of the federal government, some for the provincial governments. Is your organization federally or provincially regulated?

Note that there are serious constitutional law issues about the extent that the federal government has the authority to regulate privacy in a province. For the purposes of this paper, federal authority is assumed.

The phase-in of the federal PIPEDA was designed to allow the provinces to put their own legislation into place. As of date of writing, only the Province of Quebec has actually enacted legislation. British Columbia and Alberta have drafted and even introduced Acts into their legislative process. They may become law before January 1st. Ontario has a draft Act, but its process was interrupted by the recent provincial election, so, it may likely be changed again. Thus, analysis of the privacy law in this province must of necessity focus on the federal PIPEDA. Does any part of it affect your non-profit organization? If so, how?

The Law

The PIPEDA enacts into law ten general principles contained in the Canadian Standards Association's Model Code for Protection of Personal Information. It contains these ten principles that are to be applied to commercial activities even now. They are as follows:
  1. Accountability - An organization is responsible for personal information under its control (and, importantly, this includes third-party processors such as mailhouses, and fundraisers) and shall designate an individual who is responsible for the organization's compliance with the law. The legislators call this person the "Chief Privacy Officer". This person will have to understand policies procedures and deal with complaints. In my opinion, this person should not be a junior person.

  2. Identify Purposes - The purposes for which the information is collected should be identified by your organization at or before the time the information is collected. I can provide precedent "Purpose Statements" for organizations. They should be tailored to each organization so that they fit an organization's mission or business. Simply filling in a template will not be the best approach, as purpose, use and consent levels are best linked.

  3. Consent - This may very well be the heart of the PIPEDA. The knowledge and consent of the individual are required for the collection, use or disclosure of personal information, "except where inappropriate". Note here that PIPEDA replaces "except where inappropriate" with specific exceptions, such as, for law enforcement, emergencies and for scholarly and research purposes. Reference must be made to PIPEDA here.

    Reliance on the CSA Principles is not recommended. Your organization would be well advised to know that consent could be given in various ways, including express and implied consents. The way in which an organization seeks consent may vary depending upon the circumstances and the type of information collected. An organization should seek express consent when the information sought is sensitive (medical, grades, financial).

    Consent may be given in various ways. An application form may be used to seek consent, collect information and inform the individual of the use(s) that will be made of the information. By completing and signing the form, the individual is giving consent to the collection and the specified uses. A check off box may be used to allow individuals to request that their names, addresses and other information not be given to other organizations. Those who do not check it are assumed to consent to use for this purpose. Consent may be given orally when information is given over the phone.

    To date, however, the Privacy Commissioner has required express consent in almost all instances where consent is required a higher burden on the organization.

    All this written, I would advise getting written consent whenever possible and express consent in most situations. Reliance upon implied consent looks likely to prove problematic, given the decisions of the Commissioner so far.

    Note also that consents may also be withdrawn at any time!

  4. Limiting Collection - The amount and type of information is limited to what is necessary for an identified purpose. If new purposes develop, new consents are required, too. Naturally, information collection shall be collected by fair and lawful means.

  5. Limiting Use, Disclosure and Retention of Personal Information - An organization can only use, disclose and retain for the purposes for which the information was collected. Information shall be retained only as long as necessary for the completion of those purposes.

    For the purposes of planned giving, the information given will be needed for a long time, in many circumstances. Therefore, it would be wise to explain the need to keep the sensitive information at time of collection and the security measures in place to protect it. Keeping it is essential for its purpose. Disclosure is the key in this circumstance.

    The organization should also publish guidelines for the destruction of information that is no longer of use.

  6. Accuracy - Personal information shall be as accurate, complete and up-to-date as is necessary for the purposes for which it is used. This is just good business practice anyway.

  7. Safeguards - Take real steps to prevent the loss, theft, unauthorized access, disclosure, copying and use of personal information. Safeguards should be appropriate to the sensitivity of the information. Relevant staff should sign confidentiality agreements.

  8. Openness - An organization must make its privacy practices and policies concerning management of personal information easily accessible to the public. A website is the ideal place to set out a purpose statement, as would be Annual Reports and other direct mailings. Planned giving mailings would even benefit from such disclosure, as they are evidence that the organization is trustworthy and responsible, respectful of persons' privacy.

  9. Individual Access - Upon request, individuals are to be informed of the existence, use and disclosure of all of their personal information and be given access to it. Persons may challenge the accuracy of their information and have it changed if it is wrong.

  10. Challenge Compliance - A person shall be able to address a challenge concerning compliance with all of these principles to the designated individual(s) accountable for the organization's compliance. The Chief Privacy Officer's liaison role will activate at this point.

Purpose and Definitions

Section 3 of the Act sets out the law's purpose. It reads, "The purpose of this Part is to establish, in an era in which technology increasingly facilitates the circulation and exchange of information, rules to govern the collection, use and disclosure of personal information in a manner that recognizes the right of privacy of individuals with respect to their personal information and the need of organizations to collect, use or disclose personal information that a reasonable person would consider appropriate in the circumstances".

As one can read, there are many definitions that are necessary in order to understand this law. Additionally note that it refers to "this Part", or Part 1. Part 2 of the Act concerns electronic documents, and will be dealt with in a subsequent paper of mine.

Section 4 of the Act is the Application section of the Act. It sets out that this first part of the Act applies to, "...every organization in respect of personal information that, This applicability is limited in certain ways, including by the Federal Parliament declaring in a later Act that said Act applies notwithstanding the PIPEDA.

Section 2 of the Act is the definitions section. There, one can clarify meanings.

"Commercial activity" is defined as, "...any particular transaction, act or conduct...that is of commercial character, including the selling, bartering or leasing of donor, membership or other fundraising lists". So, for example, a charity that sold its membership list to a magazine publisher or to another charity would be engaged in commercial activity.

This definition alone is one that will cause great consternation, as entities that would not normally be thought of as undertaking commercial activities as a rule, can engage in single instances of commercial activity and therefore be caught by the Act. Thus, caselaw in Federal Court will be important (again, assuming federal jurisdiction at all).

"Personal information" is defined as, "information that can be used to identify, distinguish or contact a specific individual". Publicly available information would be excluded from the scope of the Act, as it is already "out there" in the public realm.

Another definition with which the reader should be familiar is the term "Grandfathering". It refers to information that is already in your organization's possessions, prior to the enactment of the legislation, such as client, donor or alumni files. Be aware that this existing information will be subject to the same rules as data collected subsequent to the legislation. Lawyers would say that the information will not be "grandfathered". In fact, going even further, if the collection of this information did not comply with PIPEDA requirements (even though PIPEDA did not necessarily exist at the time it was collected), organizations may have to re-contact individuals to obtain their consent to the collection, use or disclosure of the information in compliance with PIPEDA.

**Look for part two of this article on November 3. It will explain what is required of organizations once the legislation goes into effect in January, and how they should respond to a privacy audit.

Jeffrey H. McCully, barrister & solicitor, is also chair of the CAGP's Ottawa Roundtable. He can be reached at jmccully@scotmor.ca.

Disclaimer: Please note that this memorandum is a general discussion of certain legal and related developments and should not be relied upon as legal advice. If you require legal advice, I would be pleased to discuss with you the issues raised by this memorandum in the context of your personal circumstances.
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